Kiera's catheter was removed today and she was peeing in a diaper for the first time. Although we have yet to meet formally with Kiera's medical team, we were able to get some preliminary information regarding her EEG and MRI. According to her neonatologist, Kiera's brain structure and function appear to be normal at this time. Tuesday's seizure appears to be an isolated incident.
We visited Kiera twice today and both times she slept and slept and slept. Her awake times seem to happen when we are not around. This is a little disappointing but considering that the last number of days have been filled with poking and prodding, she is likely happy to rest most of the time -- and she is only six days old and we all know that infants love to sleep.
The surgery to correct Kiera's esophageal atresia is still scheduled for Monday so we are hoping that goes well so she can finally get some real nutrition.
12 comments:
So glad for the happy news you received today. Hope you'll be able to take her home soon! Many thoughts and many prayers for all of you from many people! Ang L.
Good to see some happy news for your family. Hope you can bring her home soon. Doug/Deb
I am so happy to hear that today was a more positive day and that brain function appears to be normal! She looks like a strong little cookie.
So glad to hear your news. I'm thinking about you all and hoping that I can be helpful in some way. Give Kiera a kiss on the toes for me.
Lorna
I am so glad you have set up this blog, it feels as though we can stay connected. She is a pretty little girl and we wish only the best for all of you . Our prayers are with your family. Love Linda A
Keith, Brenda, and Piper,
She really is a beauty!
Always look for the small miracles along the journey. They're there.
B: Make sure you're getting enough rest, please! There is strength in vulnerability.
Peace and Love,
Lesley and your family at Altona United
So glad to hear your news. Wishing you all the best. You are all in my thoughts and prayers!
Love Joanne B.
Glad for your good news. She looks like a fighter. Never lose your faith and hope.
Candice
I am so happy to hear her MRI scans came back with good news and that she is getting stronger and stronger....with your genes, she has a lot of fight in her! give her a big hug for me and can't wait to meet her!
miss you lots. love wanda
ps. i don't know how you find the time or strength to keep up this blog...you are a marvel of a woman!
If she ends up with a prosthetic eye, do you suppose she will be the kid that takes it out to gross out the other kids? :) Maybe you will be spared that since she's a girl, eh? So pleased she is getting stronger and has a good chance of having a fairly normal life. Love, Cheryl and Henry
Thinking of you guys every day.
Nicole and Jason
Keith,Brenda and Miss Piper,
So happy to hear baby sister has arrived! She is beautiful and has a beautiful name! Although I know Piper wanted Cindy:) My thoughts and lots and lots of Hugs and Prayer are sent your way! Please dont hesitate to call if you want Piper to have a little time with friends!!! Stay Strong!
KARI
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