Moving forward

I never thought that my family would have to deal with the things that we have dealt with in the last six months.  Having a child with extraordinary needs is beyond challenging.  Some days, it requires superhuman strength of body and of mind.  Although the treatment for Kiera's severe dumping syndrome is something we had always dreaded (24-hour continuous feeds), there is a new sense of peace in our home.  Kiera is crying now because she is tired, bored, or hungry.  We are dealing with the regular aches and pains of teething.  Kiera has been sitting independently for just over a week and she now is ready for testing the crawling waters, so there will be bumps and bruises soon.

Overall, Kiera is comfortable.  No more severe gas pains that make her sweat and pass out.  No more episodes of hypoglycemia.  No more pokes to check blood sugar levels.  No more sleepless nights in hospital cribs and crib-side cots (at least for now).  We are trying to view the continuous feeds as a positive thing because it does make Kiera more comfortable but we are dealing with the fact that our child will not be eating like other kids.  Other activities are also limited as Kiera is "hooked up" for 24 hours with short breaks only to clean her formula feeding bag.